“. . . the reason all these smart people are chilling their brains is not some new health fad but to raise awareness for amyotrophic lateral sclerosis (ALS), the lethal neurodegenerative disorder also known as Lou Gehrig’s disease. The original idea was that when the gauntlet was thrown down in the ice bucket challenge, you either need to give $100 to ALS or dump ice water on your head.” ~ Matthew Herper, Forbes (8/19/2014)

(AP Photo/Elise Amendola)


 

Sunday afternoon. Cloudy and cool, 70’s.

Hello folks. Long time, no write.

I know that I’ve been missing for a bit. It’s been very hectic around here, things we’ve been doing and taking care of, and I just haven’t had the time to sit and gather my thoughts. I’m hoping to remedy that this week.

For those of you who have recently begun following this blog, I wish you greetings and thanks.

Here is a little something I’ve been wanting to share ever since I saw my son Eamonn’s video of his own ice bucket challenge. I love how my kids can still amaze me with their kindness and thoughtfulness.

Enjoy.

                   

From the Huffington Post:

There’s been such a deluge of videos made of these ice bucket challenges (some of which have been hilarious, others more serious) that you might be tempted to skip this new video that was uploaded Monday by a man named Anthony Carbajal. But as Upworthy put it, this is one clip that “you really should see.”

The video begins humorously as Carbajal, a photographer, dresses up in a neon bikini top and soaps up a car before being doused with ice water. “OK, that was probably the most embarrassing thing that I’ve ever done in my entire life.”

But the clip, at around the two-minute mark, takes a somber turn as Carbajal explains why he chose to take the challenge. “I’ve been so terrified of ALS my entire life because it runs in my family,” he says, breaking down. “My grandmother had it. She was a second mother to me. My mother was diagnosed when I was in high school and five months ago, I was diagnosed at 26 years old. ALS is so, so f—king scary, you have no idea.”

Carbajal says he’s already started losing movement in his fingers. Eventually, just like other ALS patients, he will lose the ability to walk, talk, eat and breathe on his own.

In the video, Carbajal shows footage of him caring for his mother who cannot walk or eat without assistance. “I hate talking about [ALS],” Carbajal says in the clip. “That’s probably why nobody talks about it because… it’s so challenging to see, and to talk about. Nobody wants to see a depressing person that’s dying… they don’t want to talk about it. They don’t want their day ruined.”

But we need to keep this discussion alive, says Carbajal, so pharmaceutical companies and others will continue to be pushed to find a cure for this fatal disease. According to the ALS Association, more than $31 million has been raised so far for ALS research and patient care thanks to the ice bucket challenge.

“This is the first successful advocacy [ALS has] ever really… had and I’m so, so, so grateful,” he said. “You have no idea how every single challenge makes me feel, lifts my spirits, lifts every single ALS patient’s spirits. You’re really, truly making a difference.”

In Carbajal’s video, there’s a suggestion made that viewers should watch all the way to the end.

Please do.

Anthony Carbajal Ice Bucket video:

For more information:

ALS Ice Bucket Challenge Blows Up Social Media

What is ALS?

                   

Music by Laura Jansen, “A Call to Arms”

                   

Alone With Everybody

the flesh covers the bone
and they put a mind
in there and
sometimes a soul,
and the women break
vases against the walls
and the men drink too
much
and nobody finds the
one
but keep
looking
crawling in and out
of beds.
flesh covers
the bone and the
flesh searches
for more than
flesh.

there’s no chance
at all:
we are all trapped
by a singular
fate.

nobody ever finds
the one.

the city dumps fill
the junkyards fill
the madhouses fill
the hospitals fill
the graveyards fill

nothing else
fills.

~ Charles Bukowski
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