Just realized that I had thought this post was set up to post, but of course, I hadn’t done it. I did, however, set up my Two for Tuesday to post on Wednesday . . . This week-long migraine is wreaking havoc on my synapses.
Today is Brett’s 21st birthday. My youngest is now officially an adult . . . Here is a rare picture of Brett actually hiding a smile (taken at family birthday party). We have a theory that whenever Brett gets his pictures taken, he tries to look as morose as possible.
And then here’s one of me with almost all of the kids. Alexis was running around at the time.
Maybe im still searchin
But I dont know what it means
All the fires of destruction are still
Burnin’ in my dreams*
I’ve sat down at this “add new post” page for the past four nights. I’ve sat, waited, and then closed the page. It’s not that I don’t have anything to say; more, it’s that my mind seems to be in recovery mode still after so long away from this forum that gives me a voice, as if I’m in the same room with a long lost friend, and we are still in those first few moments of awkardness, when there are a million things to say, but none of them seem to be the right way in which to begin again.
I love this blog. I appreciate the people who stop by just to read and even more, those who leave comments and words of encouragement. I love being part of a bigger blogging community, filled with people who sent me messages over the past three weeks, letting me know that they were out there if I needed them, that they would wait for me to come back.
But my last post was so full of despair that it actually left a physical pain in my heart. To put into words all of the bigger things that have happened over the last two to three years somehow makes it more real, and therefore, that much harder to reconcile.
That post also did something else to me: It made me a bit nauseous. It smacked of poor, pitiful me, and far too much navel-gazing. So let me just pause here to apologize for being so maudlin. Admittedly, though, wearing a virtual hairshirt every once in a while does seem to help.
But time to move on.
I wanna come in from the cold
Last night, as I sat here, I heard the wonderful chirrups of the tree frogs in the backyard, and then as I was walking through the dining room, I looked out in the backyard and noticed that a strap on the pool was vibrating. A tree frog was inside the little tunnel, and every time he sang, the strap vibrated.
He was too far inside his shelter to get a picture, but I could see his small green body peeking out. Unfortunately, my invasion of his space made him cease his calls for a bit, but in about half an hour, I could hear him again.
And make myself renewed again
My uncle’s funeral was Saturday. He never regained consciousness. I wanted badly to go to the funeral, but the family lives almost 800 miles away in Florida, and this just isn’t the best time to rent a vehicle and get a hotel room.
So I stayed in touch by telephone. My aunt, who retired only last year, told me that all of the people who used to be in her department came over one day and did her yard. What a wonderful gesture. My uncle loved his yard and would send me pictures of his flower gardens when they came into bloom.
To hear about people who cared, taking the time to care for one of the things that he so enjoyed made me smile. A happy remembrance.
It takes strength to live this way
Today, I braved the brightness of the sun to play ball with Tillie and Shakes in the pool. I think that I must have done a good job because both of them are sound asleep.
Tillie is a ball hog. The only way that I could get her to release the ball in her mouth was to tease her with the other tennis ball. Wanting both, she would drop one while I threw the other ball, and then I would throw the ball that Tillie dropped for Shakes to retrieve. Quite a complicated system for a simple game of water tennis.
I found myself relaxing, though, and just enjoying the moment—something that I do too rarely. I didn’t think about anything of consequence, and I just focused on exercising the dogs and looking at the birds flying overhead.
The same old madness every day
Tomorrow is Corey’s birthday. He is none too happy. It’s all well and good for me to try to point out to him that he is hardly old, but he doesn’t hear me. I know old. He isn’t old.
When I told him to go ahead and flirt with someone while he was at Costco, he said that he couldn’t because he was losing his hair. What bollocks. He has a head of beautiful, healthy hair, and he is losing a few hairs a day in the shower, undoubtedly because of the stress. My husband is too funny.
We won’t be doing too much of anything to celebrate this week, but with any luck, maybe we can have sushi sometime soon.
I wanna kick these blues away
On other fronts, Brett is trying to gear up mentally for the school year. It looks as if they have set up his schedule for him to go every other day, which is wonderful.
I’m hoping the day off between class days will allow him to rejuvenate and to feel less pressure. If this works out well, he should miss less school and be able to stay more caught up with his work.
I’m very grateful that the head of the program at his school, as well as his guidance counselor are working with us and trying to come up with a way in which Brett can succeed this year.
Unfortunately, Eamonn was not able to start fall semester, as I had feared. Even if we had come up with the funds, we don’t have a second vehicle at the moment, and the fate of Izziethe Trooper is uncertain at best.
I feel really terrible that we weren’t able to get everything together in time, and to make matters worse, my ex called me up last week and cursed at me for three minutes for not getting the financial aid taken care of. It was a short conversation that ended with me saying something along the likes of, “If you’re so freaking concerned, why don’t you do something about it.”
His (my ex’s) reasoning that I needed to take care of everything and was falling down on the job was that his schedule is so full, and if that my computer was broken, why didn’t I go to library or something to use a computer? My pointing out that the financial aid was just one part of the equation didn’t matter. When I tried to tell him that even with the tuition taken care of, there was still no vehicle.
He actually asked me what happened to the Trooper, this after I had a conversation with him over two weeks ago about the Trooper dying on the way to Ohio. That’s the problem with trying to have rational conversations with someone who has an alcohol problem: You never know their condition when you tell them something important, and then they claim they were “never informed.”
Of course, I thought of a really good rejoinder after the nasty conversation ended: He lost the right to speak to me when he moved out of the house . . . This from the man who never took a day off to take any of the kids to the doctor. I did it because somehow I let him drill into me that it was easier for me to take a day from work.
Then I thought about it for a minute. He should have never had the right to speak to me that way. Why did I give him that right? Too often, verbal abuse isn’t recognized, even by its victims.
I wanna learn to live again . . .
Which brings me back to the subject of this post: the possibility of hope. I won’t pretend that Corey and I have a perfect relationship, but we have a really good relationship, and he doesn’t verbally abuse me. He doesn’t belittle me for my weird habits, and he loves me, imperfections and all. As do I him. Immensely.
Life has sucked lately, a lot. We run into walls, and we seem just cannot seem to get a break. But as I have been reminded of all too much with the loss of my uncle, we live in minutes and hours, not days and years.
I will make certain that Eamonn is ready for college next semester. I will take extra care to watch out for Brett’s signals that he is overwhelmed. I will enjoy the joy that my animals bring me.
I will remember to tell Corey that I really do appreciate everything that he does for me, even something as small but caring as making sure that I have Pepsi in the house. And I will appreciate the fact that I have a partner in life who could belittle me if that were his way, but it is not. His way is to tell me that he loves me every day of my life, to lie to me when I ask if I look fat, to tell me the truth when I ask about my writing, and to love and care for Eamonn and Brett unstintingly, including taking both of them to the doctor more times than I can count.
They are my shelter, my comfort, my great joy, and my peace of mind. With them, I really need nothing more.
Shantih, Shantih, Shantih.
Thank you for allowing me to be self-absorbed and for your kind words. But thank you more for continuing to visit here, for reading my words, and through your own words and beautiful images, for reminding me of all of the good and wonderful things in this world, one of which is this poem by one of my favorite writers, Langston Hughes.
Did you know that Glaucoma is the third leading cause of blindness in the U.S.? Did you know that exercising in cold weather has its hazards, like icy patches in the road if you are running? Do you know why I know these little tidbits? Because I stayed on hold an inordinate amount of time today trying to get through to the prescription center with whom my insurance is affiliated. It was wonderful. Every few minutes, a nice woman would come on and tell me that I needed to “please continue to hold as [they] were experience heavy call volume and someone would be with [me] soon.”
I thought that that was terribly nice of her, to speak to each and every person on hold, who, if they were anything like me, were approaching the 20 minute wait time. But I really needed to speak to these people. I needed a new card, and I needed to find out how much longer it was going to take for the processing of the prescriptions that my doctor had called in on December 22. Boy was I in for a surprise, and it wasn’t a good one.
Live human being comes on the line, very nice human, only to tell me that there are no prescriptions in process for me. The last thing she has for me was in September. I patiently explain to her that I was standing next to my doctor when he was telling his assistant who was on the phone with my prescription provider at the time as to what to call in, and that was on December 22, the day of my appointment. Sorry, nice human being, apologizes, but we have nothing for you, and as a matter of fact, you account closed on December 31, so we cannot send you a new card or process any more prescriptions . . .
Long pause on my end . . . I’m sorry . . . what did you say?
Your account closed on December 31.
No, that’s not possible.
Still nice human: I understand, but perhaps you need to check with your provider. You can have them call back, and we can expedite your order.
Fine, through clenched teeth, trying to remember that nice human is only doing her job and has in no way caused this situation. I’ll have someone call you back. I hang up the phone and call my health insurance provider. On hold for about 20 seconds. Live human being, also nice asks for my ID number.
I reply, well that’s going to be hard since my wallet was stolen and my card was in it, and I need a new ID.
Oh, how terrible, says Live human, and asks for my birth date, address, all of the info to confirm I am who I say I am and not some nut job wanting an ID from a health insurance company who happens to know all of my bona fides. Oh, happy birthday early, she chimes.
For a moment I don’t know what she is talking about, and then I remember. Oh crap, another birthday, mine, this month. Shit. Great. Moving along.
She tells me I’ll get the card in about 8 to 10 days. I stump her with my next question: So I do have active coverage then?
Um, yes you do.
So I tell her my plight and ask if she’ll call my prescription provider and verify that I have coverage because I’m out of my migraine medicine, and things are getting critical. She tells me that she would if she could, but she can’t as she can only verify that I have health insurance, and I need to have someone else verify prescription insurance. At this point, I am totally lost because I thought that my prescription coverage was part of my health insurance. Obviously, I am mistaken.
So This Much is True
However, since it was a little past 5 and no one at GW main campus stays a second after 5, so my big plans for taking care of all of this unfinished business are screwed. I hate dealing with this stuff, that’s why I’ve put it off for so many days. I did manage to get Brett’s appointment straightened out, call his doctor’s office to get the letter faxed to his school about his absences, reschedule the orthodontist appointments, and find out that I don’t need an appointment for my stretchy/bendy test at the radiologist’s at the hospital. I know that it’s not called a stretchy/bendy test, that there’s some other name for it, but I figure that’s better than calling it a Gumby test. The point is that I have to stretch and bend and they take x-rays.
So tomorrow, I get to deal with GW Human Resources. I can hardly wait. I can’t hardly wait. Which is it? Which one is worse? If you can hardly wait, does that mean that you can wait forever? If you can’t hardly wait does it mean that you cannot wait at all? I’m confusing myself. The point is that a telephone call to GW Human Resources is akin to “Once more into the breach,” and I’m sorry dear Henry, but I just don’t have the stamina to go into the breach with you and on to St. Crispin’s Day.
But Wait, There is Good News After All
But there is some good news: It turns out that my picture of Caitlin, the one that I’ve carried around for 20 years, was not in the wallet that was lost/stolen. It was in my smaller card wallet. I don’t remember putting it there, so I never bothered to look. Imagine what a wonderful surprise it was for me to find it there when I was looking through my card case to see if I had perhaps lost my Social Security card as well (I had not).
Finding that picture means more to me than I can possible put into words. It’s just a simple snapshot of me holding Caitlin; she is wearing a pink dress, and everything looks absolutely normal. That’s what is so wonderful about it. It’s before we knew that she was sick, before the operations, before the PICU, before all of the tubes, the intubation, the vials and vials of blood, the respiratory therapists, the neurosurgeons, the oncologists, the nights spent on vinyl furniture. Before life turned to hell. Life was still normal, and Caitlin was just my baby girl.
But that snapshot is one-of-a-kind. I don’t have the negative. I don’t have a copy. So whoever took my wallet, a belated Merry Christmas to you. I hope you really needed the money. We needed it, but maybe you needed it more. I got back the one thing that I truly missed, the thing that I thought was gone forever. Everything else can be replaced, even if it means staying on the phone forever listening to recordings and fighting with bureaucracies. You cannot take away the one thing that would mean nothing to anyone else.
And with that, I’ll close for now. More later. Peace.