“You cannot fight against the truth
of what has happened.
You cannot expect metaphor
to comfort you” ~ Nate Pritts, from “Decoherence”
Sunday afternoon with an amazing effulgent sun and unseasonably warm temperatures, 65 degrees.
I’m not entirely certain as to what I want to say today, but I know that the words are just below the surface. The fact is that I probably should go for a walk up to the ridge and beneath the trees, especially as the weather is beautiful even though the wind is wicked, and more than likely, I will interrupt this post to do just that, or perhaps not. I haven’t decided yet.
Last night was another rough one, sleep wouldn’t come even though I was so tired, and then I awakened several times during the night, only to spend about three hours trying to will myself back to sleep. If you’ve never suffered from insomnia, you cannot possibly understand, but if you, too, have been susceptible to these spells, you have my complete sympathy. Once morning comes, more often than not, you feel groggy and half formed, at best.
One of the main reasons that I’m having such a hard time sleeping is that I’m out of a lot of my regular medications. Since moving here, I’ve had a real beast of a time trying to find a pain management practice that will take me, and I have yet to find a practicing psychiatrist who is accepting new patients. It took three months just to find a primary care physician because no one wants to touch you if you have been in pain management because the assumption is that you are a drug addict. I’m not joking about this.
“Meanwhile, within the tiny moments of this hell
I was fighting a small fight of my own which was not leading
anywhere—but like a man with a bent spoon trying to dig through a
cement wall I knew that a small fight was better than quitting: it
the heart alive.” ~ Charles Bukowski, from “If you let them kill you, they will”
Apparently, this area is rife with people who are addicted to opiates and amphetamines, which means that those of us who just want meds in order to live a normal life are pretty much out of luck. Without my maintenance pain meds, I spend hours trying to calm my legs, as one offshoot of my chronic pain is RLS (restless leg syndrome), and like insomnia, it’s almost impossible to describe to someone who has never experienced it. Essentially, though, your legs tingle and ache, and you feel the need to keep moving them to try to find a comfortable position, something that doesn’t exist.
The medicine most prescribed for RLS, ropinirole, is one that I cannot take because it can cause tardive dyskinesia, which is involuntary body movements. Oh, the irony. Several years ago, I took relpax, and for a while, it was doing good things for me, that is until my doctor noticed that I was moving even while sitting, so she promptly pulled it from my regimen. Later, my pain doctor prescribed ropinirole for my RLS, but it wasn’t until much later that I realized the connection when I started making those weird movements without realizing it. So the medicine that is supposed to stop the discomfort of RLS movement can cause dyskinesia, or involuntary movement: it’s yet another instance of damned if I do and damned if I don’t.
Unfortunately, the RLS is the least of my medical issues. I’ve been without my maintenance meds for more than two months now, and the result is that I am back to having three or four migraines a week. It’s so disheartening because I had finally gotten my migraines under control after years of trying to find the med that would work best for me, and I tried a dozen or more, including Botox—no lie. So until I can find a neurologist or pain medicine doctor, I’m basically ingesting ibuprofen and supplements in an attempt to stem the tide. The success is limited, at best.
“Lonely for weeping, starved for a sound of mourning
I bowed my head, and heard the sea far off
Washing its hands” ~ James Wright, from “The Slackening of the Tide”
Anyway, enough of my medical trials and tribulations . . .
I was telling you how we actually came to be here, on this glorious piece of land with so very many possibilities, so let’s go back to 2017 again. As I had mentioned, 2017 was one helluva year for us, all of us, near and far. But in the midst of this, Corey took his mind off things by looking for land. We had decided that once we could get back to a somewhat stable place, that we were going to move.
I had wanted to leave Norfolk for years, but never felt that I could or should because of my mother; I’m an only child, you see, and while that may seem like a wonderful thing to be, it actually isn’t, especially if you have an elderly parent with medical issues of her own. I’m not complaining about it; god knows my mother took care of me through my asthma, migraines, and a host of other things. But once I had begun to recover from her death in 2014, we decided to look for the land that we had always talked about.
The first piece of land that we looked at was absolutely gorgeous, but it came with a hefty price tag, one that we could not possibly afford. Then, during the summer of 2017, on a whim, Corey and I decided to look at another piece of land that he had found. It was about seven hours from Norfolk, but we ended up driving around for about nine hours because we got so lost. Once we finally found it, though, we both fell in love. It was over 100 acres, and there was a small house on the property that was built in the late 1800s. Fortunately, it had been updated over time. Even better, the price was amazingly affordable.
So began our saga of trying to leave Norfolk, and the house that I had lived in for a very long time. I simply cannot go into all of the details that made this transition so hard, but it will suffice to say that it took us almost a year from the time that we first saw it to the time at which we finally arrived. It was a very, very, long, hard year.
“It takes courage . . . to endure the sharp pains of self discovery rather than choose to take the dull pain of unconsciousness that would last the rest of our lives.” ~ Marianne Williamson, from “A Return to Love”
Honestly, there were days in which I believed that the dream that we had so fervently sought would never happen. And during the wait, we suffered—emotionally, physically, spiritually. It seemed that the entire world was against us.
You know, at times like that it’s hard not to wonder if some kind of karmic disharmony isn’t being visited upon you. You begin to think that you must have done something absolutely horrible at some point to be faced with the almost insurmountable. There was even a point during all of this that a piece of the ceiling in the Norfolk house suddenly crashed to the floor, and all that we could do was look at one another and shake our heads because it just felt like it was yet one more thing beyond our control. Mind you, a piece of your ceiling falling is a pretty major event, but we had been through so much that by the time it happened, it was just one more thing in a very long list of one more things. It’s weird to think of that event in that way now
But we clung to one other and to the possibility of actually realizing a dream that had seemed so out of reach for so long, and very long story abbreviated, now, here we are. And there is no other place in the world that I would rather be.
“In this life, this is how
one must wait, past despair,
the heart a fossil, the minutes molten, the feet turned to stone.” ~ Li-Young Lee, from “Here I Am”
Well, that all came out much faster than I had thought. I suppose the words were much closer to the surface than I had thought. That’s good when that happens, although at times I feel that I’m just throwing words at the screen and hoping that something sticks and makes sense, kind of like spaghetti noodles that aren’t overcooked.
In returning to this forum, I realize that I’m more than likely opening some wounds that really haven’t healed, but this is how I heal best. Fingers on keys, letting them fly without restraint (my very dear friend Rebecca once likened my typing to machine gun fire). I realize that I’m fortunate to have this ability—to write, not to type rapidly—because I am well aware that many people out there who are wounded or trying to heal have nothing more than their own thoughts, and that can often feel all-consuming. But I have always written my way out, have done this since I was a child—truly. I wrote my first poem when I was six. I started my first journal when I was twelve. Words have always been the balm to my soul.
I hope that by rekindling my love affair with this blog, that perhaps my words might touch someone out there in the ether and let them see that they are not alone in feeling lost or depressed or overwhelmed. I do not proclaim to have answers for anyone, myself least of all, but sometimes just reading someone else’s words can be a salve, much like hearing the perfect song can help us heal. We take what we can get, right? We are all only human after all.
Just a note: Today’s poem is a direct result of watching “Little Drummer Girl” on AMC, which was incredible. I really love it when shows incorporate beautiful poetry into the story lines, and Darwish is one of my favorites. I’ve featured his works here before.
More later. Peace.
*By the way, I did pause in this post to go for a long walk up to the top of the ridge with the dogs, which is where I took some of the images in today’s post.
Music by Katelyn Tarver, “You Don’t Know”
Now, as you awaken
Now, as you awaken, remember the swan’s
last dance. Did you dance with young angels
while you were dreaming? Did the butterfly
light you up when it burned with the eternal
light of the rose? Did the phoenix appear clearly
before you and call you by your name?
Did you see the morning dawn from the fingers
of the one you love? Did you touch
the dream with your hand or did you
leave it to dream alone, aware suddenly
of your own absence? Dreamers don’t abandon
their dreams, they flare and continue
the life they have in the dream…tell me
how you lived your dream in a certain place
and I’ll tell you who you are. And now,
as you awaken, remember if you have wronged
your dream. And if you have, then remember
the last dance of the swan.