“I fear I will be ripped open and found unsightly.” ~ Anne Sexton, from A Self Portrait In Letters
Sunday afternoon. Sunny and chilly, 51 degrees.
Well, long time, no write, hmm?
Let’s see. Where were we? When last I posted, I was in the midst of a never ending migraine, one that wouldn’t abate with shots, meds, what have you. Finally, I went on an aggressive two-week regimen with upped doses of my pain meds, and it seemed to break, at least for a while. Good news on that front, yes, but don’t worry. Things continued to be interesting.
It seems I’ve developed akathisia from my seroquel, one of the meds I was on for sleep and anxiety. What is akathisia, you might ask? Well, it’s this wonderful condition in which you cannot stop your body from moving: tapping feet, rocking from side to side, and all kinds of variations. Mine appeared as an ability to keep my feet from moving while lying in bed at night, but I didn’t really think anything of it. I have no idea when it started, exactly, but it’s been going on for a while.
So at my last check-in with my prescribing psychiatrist, she noticed that I was fidgety. She asked me how long I had been that way. Who knows, I said. I’m quite anxious at the moment with everything that’s going on in my life. Could be that, I said. She gave me a look, suggested we switch up meds, try an extended release seroquel. Great.
Well that particular medicine landed me in bed, unable to wake up for more than a few hours. Not so good. I mentioned the fidgeting to my neurologist at that checkup. He gave me that look. Said, look I don’t want to worry you, but I want you to look up extra-pyramidal syndrome and akathisia.
So I did.
“As for myself, I am splintered by great waves. I am coloured glass from a church window long since shattered. I find pieces of myself everywhere, and I cut myself handling them.” ~ Jeanette Winterson, from Lighthousekeeping
So ny prescribing psych and I agreed to stop the seroquel completely. Only problem is that at night, I cannot get comfortable. My feet won’t stop, and my legs feel terrible, and everything sucks. Yes, yes. RLS, or restless leg syndrome, which I supposedly do have, but which can be mistaken for akathisia, or vice versa. Add to that that our mattress is worn and it makes my back hurt, and on and on and on . . . ad infinitum. So it’s back to the doctor(s) to try to tweak the meds.
Look. Enough already. I am so fricking tired of not feeling good that I’m ready to bang my head against a wall, except for that whole headache thing. I need some energy. I need to feel like myself. And I especially need to be able to sit down at this computer and do stuff instead of looking at it across the bedroom as if it were some time bomb getting ready to go off.
I literally have not sat in this chair and plied these keys in weeks. I’ve even taken to glancing at my e-mail on my phone, of all things. Oh the joys of having a smart phone. I look up medical terms like akathisia. I look up the weather. I look up whatever, anything to avoid coming back here.
Don’t ask me why being here, on this computer, on this forum is paralyzing me, but it is. I suppose its my unspoken pact with myself that I will continue to keep this blog going, that I will make it a place in which people who love quotes and art and minutiae will enjoy visiting, and because I have not done that for months now, I feel like such a failure—once again
“It’s never the changes we want that change everything.” ~ Junot Diaz, from The Brief Wondrous Life of Oscar Wao
Things are precarious at the moment. One son is completely heartbroken over a relationship that he ended and has decided that former girlfriend is now the love of his life. Ah to be 23 . . . not. Another son has been off his meds and is trying to cope, but I don’t think it’s working. And my daughter? Geez, I can’t begin to figure out what is going on in her mind, what possesses her to continue to do the stupid things that she does. I just want to grab her and shake her and say, “What the hell are you doing with your life?”
Then the whole oil/shipping thing has us over a barrel (no pun intended). We never thought we’d be facing down a repeat of those black years of 2008-2010, but it appears we are. Is it horrible that I want gas prices to go back up? Ah yes, it’s wonderful to be able to fill the tank for under $40, but given a choice, I’d rather spend more at the tank and have jobs come back in the industry.
And out of respect for Corey’s wishes I haven’t written about the situation before, but his family knows now, and the kids know, so what does it matter that I’m throwing it all out there again?
“I would like. I would like anything at all, but fast. I would like to get out of here. I would like to be rid of all this. I would like to start all over again. I would like to leave all this. Not to leave through an exit. I would like a multiple leaving, a whole spread of them. An endless leaving, an ideal leaving so that once I’ve left I begin leaving again right away.” ~ Henri Michaux, from “With Mescaline,” trans. David Ball
So is it any wonder that I have retreated from everything?
I haven’t been on my tumblr in a month. My inbox is completely overflowing. Mail lies unopened on the table by the front door. Furniture goes unpolished. Dust has gathered in corners, forming tumbleweeds. And I walk through the house seeing, but unable to act.
When Olivia is here, it is a brief respite, a welcome distraction, but it also exhausts me. I leave the house to go to doctors’ appointments and for little else. Corey and I pass one another silently. He keeps to the dining room, looking out the back door, and I stay in here, a self-imposed prisoner to my bed. We don’t seem to be able to help one another.
What kind of life is this?
The only good thing is that I have been devouring books, that is up until this past week, when I suddenly found it impossible to concentrate on the words before me. Before that, I went through almost a dozen books, but books can only sustain for so long before the brain begins to shut down. And beneath all of this runs the undercurrent of my mother.
“The present is already too much for me. I can’t cope with the future as well.” ~ Salman Rushdie, from Shalimar the Clown
You see, I still haven’t made it to the cemetery to put on the silk flowers I bought ages ago. I still haven’t paid to have the dates put on her gravestone, and now I don’t have the money to do so. And so I have failed her once again.
Will I ever arrive at a day on which I do not think of my mother and close my eyes in shame and regret for all of the ways in which I failed to make a difference in her life? Do you know the number of times in my life that I can remember my mother telling me she was proud of me? One. The number of times in my life I can remember her telling me she loved me? A handful.
How could this woman who so many found helpful and friendly have had such a completely different demeanor when it came to her only daughter, her only child? I will never have the answer to that question. Not ever, and so I continue to be haunted in the backdrop of each day by what a complete and utter failure our relationship was, how we failed one another, how I never quite measured up.
And you know what? That really and truly sucks.
More later (I truly hope to keep this promise). Peace.
*All images are by Swiss artist Ferdinand Hodler (1853-1817), one of the leading symbolist painters of the late 19th century. I love his paintings of women.
Music by Beth Orton, “Mystery”
The Sensual World
I call to you across a monstrous river or chasm
to caution you, to prepare you.
Earth will seduce you, slowly, imperceptibly,
subtly, not to say with connivance.
I was not prepared: I stood in my grandmother’s kitchen,
holding out my glass. Stewed plums, stewed apricots–
the juice poured off into the glass of ice.
And the water added, patiently, in small increments,
the various cousins discriminating, tasting
with each addition–
aroma of summer fruit, intensity of concentration:
the colored liquid turning gradually lighter, more radiant,
more light passing through it.
Delight, then solace. My grandmother waiting,
to see if more was wanted. Solace, then deep immersion.
I loved nothing more: deep privacy of the sensual life,
the self disappearing into it or inseparable from it,
somehow suspended, floating, its needs
fully exposed, awakened, fully alive–
Deep immersion, and with it
mysterious safety. Far away, the fruit glowing it its glass bowls.
Outside the kitchen, the sun setting.
I was not prepared: sunset, end of summer. Demonstrations
of time as a continuum, as something coming to an end,
not a suspension: the senses wouldn’t protect me.
I caution you as I was never cautioned:
you will never let go, you will never be satiated.
You will be damaged and scarred, you will continue to hunger.
Your body will age, you will continue to need.
You will want the earth, then more of the earth–
Sublime, indifferent, it is present, it will not respond.
It is encompassing, it will not minister.
Meaning, it will feed you, it will ravish you,
it will not keep you alive.