“Untitled,” by Galina Lukianova
“I believe fervently in the nature, in truth and imagination, I believe in the blood, in life, words, and motivations.” ~ Gael Garcia Bernal
Well, my computer is still broken. The part that Corey ordered did not fix the problem. Of course it didn’t because it cost less than $20. As is usually the case, the part that I probably need to fix the problem will cost much more. I don’t know for sure, though, because Corey cannot find the part I need (CPU fan) anywhere.
Surprised? Not really.
It’s Wednesday afternoon. The heat wave finally broke, and temperatures here are hovering around 90° F, about normal for this time of the year. Speaking of which, how did it get to be the end of July? The fact that I am constantly surprised by how late it has gotten never ceases to surprise me, but you would think that I would have grown accustomed to the incongruity of time passages by now.
Anyway . . . the sun is shining with a few puffy clouds scattered about in the sky. The Jack Russells are currently asleep beneath the chair in which I sit, so I suppose that all should be right with the world, but it is not.
This past Sunday night, Alexis called me to let me know that one of her best friends, Jennifer, with whom she works at the thrift store, had been admitted to the hospital. Alexis said that the doctors had found three brain tumors in Jen’s brain. I had to wait to write about this as it really threw me.
“It is dark inside the body, and wet,
and double-hearted. There are so many ways
to go, and not see, and lose
the feeling of the thread…
and never reach the fabled center.” ~ Larissa Szporluk
Of course, this is not about me and my reactions, but at the mention of brain tumors in a young woman of 26, I found myself once again railing at the injustices of fate. Jennifer has a five-year-old son named Reilly, who she absolutely adores. She is a single mother who works hard. She is also one of the nicest people I have ever met.
When Alexis was much younger, I was a bit wary of Jennifer because he family is so dysfunctional, but I realized that it doesn’t really matter what kind of family you come from as it matter more what you do with yourself on your own. I mean, I always thought that I would never have any problems with Alexis because we have tried so hard to give her a normal upbringing, whatever that is. I mean, a home, food on the table, values—but that did not stop her from unexpectedly running wild in high school and causing me endless heartache at the time.
So I suppose that what I am saying is that I initially misjudged Jennifer. Now she is faced with a great unknown, and her biggest concern is not her own health, but her son’s reaction. Then earlier today, Alexis phoned me to tell me that the latest tests show five tumors, not three: three in her brain, two on her spine.
Five tumors. Twenty-six-years old. A five-year-old son. No health insurance. To try to pinpoint the worst aspect of this situation is fruitless. It’s all bad, horribly, terribly bad.
“Come stand with me
under the summer shower –
healed of world-madnesses” ~ Paul Reps
Alexis has been taking Reilly to school in the morning before work and picking him up after. Jennifer’s younger brother is taking care of Reilly in the evenings. I told Jennifer that Reilly can come over here anytime someone is needed.
In the meantime, Alexis has diligently informed all of their mutual friends and kept them up to date. One of Jennifer’s dearest friends drove into town this morning.
No word yet on when the big operation will take place. No idea on whether or not any or all of the tumors are removable as the neurosurgeon won’t know until he cuts her open. And then, of course, the wait for the biopsy results on each tumor. There was some confusion today about what kind of operation she was being taken in for, but I told Alexis that if the estimated time is only an hour, then it’s not the big operation; more probably, the doctors are inserting a shunt to drain of some of the fluid build-up in Jennifer’s brain.
That I have this knowledge in my long-term memory is both a blessing and a curse. I can sit her on the sidelines and inform Jennifer and her friends and family about some of the things to expect. I can try to explain some of the tests to Jennifer so that she isn’t so stressed. But in the back of my mind, all I can think about is the day of Caitlin’s surgery, the hours and hours of waiting, taking Valium and hiding in a room away from all of the well-meaning people who had come to the hospital to support us. And more hours of waiting, only to be told the news and the prognosis.
Five tumors. One tumor. Five times the chance of something going wrong.
Corey reminds me that Jennifer is a woman, much stronger than an infant. But by the time the tumors were found, she was already in a much-weakened state. You see, Jennifer has been sick for months. She has gone to a few doctors about her headaches. One told her that she was depressed and needed to eat bananas. None of them did a CT Scan or an MRI. She also went to an oral surgeon to remove an infected tooth, which everyone thought might be the main cause of her health problems as she had put off getting the tooth fixed because of the lack of insurance.
Eat bananas. I am reminded of other callous remarks tossed out so nonchalantly years ago by doctors denuded of compassion, and how I had enough rage to kill someone. There is rage again.
“Whatever our struggles and triumphs, however we may suffer them, all too soon they bleed into a wash, just like watery ink on paper.” ~ Arthur Golden, Memoirs of a Geisha
There is rage at fate and rage at life. Rage at injustice and those things over which was have no control. But mostly, for me at least, there is a sense of emotional rage at the fact that on top of everything else, Jennifer is lying in ICU wondering and fretting over how she will ever pay for her hospital stay, her medicine, her operations.
This young woman, who works for less than $9 an hour, who has no benefits, no sick leave, nothing, earns no money each day that she is out of work. Her job is not guaranteed, but I believe that the people for whom she works will hold her job. But the reality is not when Jennifer will be able to go back to work, but if. And then what? What does she do to exist if she is unable to work. She has no long-term disability coverage as I do. And as much as I bitch about how my coverage is menial, at least it is something.
It’s hard not to be angry at the world, not to want to call someone and just scream at them. Perhaps a Republican Senator who cannot wait to repeal Obama’s healthcare reform. After all, healthcare is provided for members of Congress, as well as their families. It is not provided for people like Jennifer, people on the fringes of society who are not layabouts, drug addicts, or welfare moms who are supposedly living on the comfort of unemployment and government assistance, or whatever other derogatory term is being bandied about.
Jennifer is one of those individuals who does not rely on other people or the government to provide for her, and look at where she is now. Try telling her and people like her how tax cuts for the wealthy are going to help.
I’m sorry. This wasn’t meant to be a tirade on politics, but it’s hard not to think about the bigger picture when someone you know is being engulfed by it. Jennifer isn’t just a statistic; she is not someone who falls into category A or category B on some political demographic chart used to measure the invisible part of American society—the part that drives ten-year-old cars that are falling apart and are glad just to have transportation, the segment that lives in questionable neighborhoods because the rent is more affordable but pizza deliveries are not available because of the danger, or the people who spend money not on nights out on the town or designer shoes.
Jennifer is a member of that group of single, working women who must budget one-fourth of her take-home pay for her son’s daycare in lieu of trying to get health insurance for herself and her son. And now she is part of that group that has the uninsurable pre-existing condition, that label that makes obtaining health insurance well-nigh impossible.
So yes. There is rage.
And so we all wait, each of us in our own fashion. We wonder what news the days will bring, and we try not to think of possibilities.
More later. Peace.
Music by Sia, “I Go to Sleep” (originally by The Kinks)
Lola's Curmudgeonly Musings 